Duchenne Muscular Dystrophy is a hereditary neuromuscular disease causing progressive muscle loss, that ultimately leads to the deterioration of the heart and lungs. It is caused by a gene mutation of the protein known as dystrophin. This gene is necessary for the proper function and healing of muscles. As of now there is no known cure for this disease.

DMD primarily affects males and symptoms can begin as early as two years old. The first signs may be exhibited by way of developmental delays; the affected child will experience muscle loss/weakness and soon have difficulty walking and running. As the disease progresses it begins to impact the heart and respiratory muscles, which can inevitably lead to acute respiratory failure. The average lifespan of the individual diagnosed with Duchenne Muscular Dystrophy is 18-25 years. However, due to modern advancements in cardiac and respiratory care, many with DMD are able to live into their early 30s and beyond.

The founders of RAAM57, and family, have experienced the grief associated with this disease firsthand. Thus, we share a particularly strong passion and drive in pursuit of finding a cure. Your added support to this cause could not only lead to curing the disease, but also assist in drastically improving the quality of life of those affected. Through the Muscular Dystrophy Association and other support groups, resources are now available to better accommodate children, young adults, and families navigating this difficult disease. Below are links if you wish to learn more about how to help.

We cannot thank you enough for your consideration in support of this cause.